I have to be honest with you right up front. This speech that I’m about to give is not the
first one that I wrote for this occasion.
My initial attempt was filled with facts, figures and percentages. It was a good speech, but it lacked the true
emotion and deep passion that’s been rising up within me for sometime now. So I’ve decided to scrap that version for
this one and talk to you in a way that sometimes only a Navy Chief Petty
Officer can – straight and to the point.
Disability awareness is on the rise around the world. Google “cerebral palsy” and you’ll find a
wealth of information that was unavailable just a few short years ago. Social media sites have allowed parents of
special needs children to connect and serve as a platform to share common
experiences. National campaigns such as
the one we are kicking off today are key in addressing vital issues that those
within the handicapped community face daily – ones of inclusion, employment and
equal opportunity.
Conferences, seminars and increased public discussion help
shed needed light on a segment of society that I believe many people think are
beyond help. We need to change that
perception throughout the land and to do it we need your assistance. Consider this your call to action.
If you think that one-person taking action cannot make a
difference, let me give you an example of where it did:
In the 7th grade, I was on my junior high school
wrestling team. It was about two weeks
into the season and I was struggling. You
see I was born with cerebral palsy, which is a brain disorder that affects the
muscles in my body. My brain does not
send all the signals that my body needs in order to function as smoothly as I
would like. Because of this, I have to
put thought behind every movement. When
I want to walk, I tell myself, “Pick up your foot and set it down; pick up your
foot and set it down.” There’s a little
delay in this process that I describe as having a dial-up modem for my body
while everyone else is running on high-speed broadband.
A delay on the
wrestling mat is definitely what you don’t want to have. Successful wrestlers move gracefully,
anticipate moves ahead of their opponent, and are able to think quickly on their
feet. Thin, weak and moving around the
mat with as much grace as a box of rocks, I was short on natural talent, but
long on desire. I had made the decision
to keep my handicap to myself because I just wished to be part of a team and
not become, “that wrestler with cerebral palsy.”
One day the coach called me into his office to tell me that
I was cut from the squad and needed to clean out my locker.
I had tears in my eyes as I left the office, only to find
the school’s best wrestler and 8th grader, Phil Freeman sitting
there, taking off his wrestling shoes.
When I told Phil that I’d been cut from the team, he looked at me for
about five seconds, stood up and marched directly into the coach’s office. Coming out a couple minutes later, Phil
informed me that I was still on the team.
I didn’t find out what was said until many years later, but Phil told
the coach, “If John goes, then I go with him.”
Imagine an 8th grader putting it all on the line for a 7th
grader, one that he met only a couple of weeks earlier.
That, my friends, is action.
My parents took action in their own unique way as well. No, they didn’t have to fight the fight that
so many special needs parents wage for their children – the one with school
boards, testing agencies and hospital administrators. My folks took action by simply allowing me to
try things. They let me be a kid. Their guidance to me was simple: Get outside
and play. I fell down (a lot), scraped
my knees and got into trouble with my seven brothers and sisters. My parents allowed me to try anything that I
wanted as long as I was willing to work hard and as my dad would often say,
“Don’t come home cryin.”
So they said, “Yes” when I wanted to join that wrestling
team and yes when I told them that I wanted to join the United States
Navy. I think they had their fingers
crossed behind their backs for that one!
My point here is that my parents allowed me to try – to seek
inclusion on my own terms and in turn, find my place in this world. Society could learn a valuable lesson from
Edgar and Shirley Quinn.
I took action by opening the door to that recruiter’s office
in 1981 and further, by keeping my cerebral palsy hidden from military
officials. I made this decision for two
reasons. One, I didn’t think the Navy
would let me enlist, and two - much more important to me was the idea that I
didn’t want any special treatment or favors.
I didn’t want to be known as, “That sailor with cerebral palsy.” I was seeking inclusion on a level playing
field.
Much like the wrestling team, all I wanted was a chance to
prove myself. And for the next twenty
years, the Navy put me out on the mat saying, “Go ahead, kid, lets see what ya
got.” And prove myself I did, serving
around the world on two aircraft carriers, a battleship, destroyers and
more. I stood every watch, fought every
fire and performed at the highest levels.
I’m proud of my time in the service.
One of the first questions people ask when they hear that I
served in the Navy with cerebral palsy is, “How were you able to accomplish
this?” Looking back on my time in the
navy, I realize I took the proper action to achieve success. Working with the Navy SEALs early in my
career showed me ways that I could get stronger, both mentally and
physically. I took those lessons and
apply them into my daily life still today.
I also became very good at my job which earned me a reputation
throughout the fleet as someone who could be relied on in any situation. Having people focus on my skill as an
administrator kept the focus off of any physical limitations that I sometimes let
show through.
When I retired from the Navy, I could have gone the
traditional route of many of my shipmates by getting a job in the
defense-contracting world. I almost
did. The offers were there. All I had to do was say yes. But then I met a young boy with cerebral
palsy and everything changed. Trevor
looked at me, a successful man with the same condition as himself, in such a
way that I soon realized that I had an obligation to try and share my story
with the rest of the world. I took action
and started writing the very next week.
I often wonder if what would have happened if I told the
truth about my cerebral palsy from the very start. Would the Navy allowed me to enlist? I got my answer shortly after my memoir; Someone Like Me – An Unlikely Story of
Challenge and Triumph Over Cerebral Palsy was released. Young men and women from around the country
contacted me seeking my advice. They all
wanted an answer to this question, “I have a mild disability and want to serve
my country. Should I keep it a secret as
you did?”
My response was always the same. No.
Speak the truth. It’s the best
course of action. Come to find out that
might not be the case after learning that these young kids are not even being
allowed to take the military entrance physical.
They are being left out on the sidewalk, frustrated in their desire to
serve their country.
Let me be clear, I’m not asking for a lowering of standards
to allow entry. As someone who has stood
the watch, I fully understand and support tough standards for military
enlistment. What I’m asking for is
simply this. Allow them to try.
Sadly, that’s not happening in the military or civilian
workplace. There’s a reason why the
employment participation rate for people with disabilities is at a shockingly
low 21 percent. Employers are fearful of
people who are disabled. They see
someone in a wheelchair or using a prostatic and automatically think that
individual is less capable than an abled-bodied person. Nothing could be further from the truth. People with disabilities have been proven to
be some of the hardest working, most dependable workers out there today.
I have a mentally challenged brother and sister who get up
and go to work every day. They both take
great pride in their jobs and love being able to contribute to society. Their employer would certainly attest to
their value. They come in to work on
time, always dressed appropriately, are unfailingly polite and respectful, and
work hard without complaint. You should
see their smiles as they cash those paychecks!
I believe this country must do a better job employing people
with disabilities. The Navy told me
never to state a problem without offering a solution, so here are a few
suggestions for employers:
- Conduct a “disability audit” of your company, business or
organization to ensure strict compliance to federal law. The U.S. Small Business Administration in
partnership with the U.S. Department of Justice publishes the Americans with Disability Act Guide to Small
Business. On it, employers will find
specific ways to improve service for those with disabilities by addressing such
issues as:
- Physical removal of barriers and
obstructions in parking lots.
- Handicap parking space
guidelines.
- Proper door width to ensure easy
wheelchair accessibility in both front entryways and company restrooms.
- Proper isle width and counter
height.
- Employee training.
- How to better promote businesses
to those with disabilities.
Although some of these needed adaptations sound expensive,
most changes can be made relatively inexpensively and there are tax credits
available to help businesses defer larger construction costs.
To those in the manufacturing sector, I suggest that you
take a look at your companies product, whether its computers, pickup trucks or
microwave ovens. Ever thought of coming
out with a line of products to fit the specific needs of the disabled
community?
I read a letter last month that a high school student by the
name of Matt Walzer recently wrote Nike.
Matt has cerebral palsy, which affects the muscles in his hands making
it impossible for him to tie his shoes.
Matt asked Nike to come out with a line of basketball or running shoes
with an auto-lacing closure system to secure his feet. What a great idea – and one that I believe speaks
to the untapped potential of modifying existing products directly to the
disability community.
If I was going to start a business today and was looking for
employees, I would turn my attention to the highly capable pool of talent that
is our nation’s veterans. Three words
that veterans of this great country know very well are courage, honor and
commitment. To those who have worn the
uniform of our nation, these words have meaning, depth and feeling. Veterans have lived them on the beaches of Normandy,
the jungles of Vietnam, and in the searing desert of Iraq. When a young man or woman willingly raises
their right hand and swears an oath to protect and defend this nation against
all enemies, foreign and domestic, they are demonstrating, for the entire world
to see, the true meaning of sacrifice. By
hiring former members of our military, employers are gaining skilled employees
who take the values that they carried on the battlefield and can apply them
directly into your business. There are
several tax credits available for businesses that hire veterans including the
Vow to Hire Heroes Act of 2011 and the Returning Heroes Act. I strongly encourage employers to hire a
veteran today – I believe it’s one of the best investments a company can make.
There was a time in our nation’s history when segregation
ruled the land. People of color were not
allowed to eat at the same counter or drink from the same water fountain as
their neighbors. Women were not allowed
to vote or serve in combat. Gay and lesbians
were allowed to join the military as long as they followed “Don’t ask, don’t
tell.” With the passing of laws such as
the Civil Rights Act of 1964 and the Americans with Disabilities Act of 1990, we’ve
come a long way as a nation, but I feel that we have a long way to go. Just like the civil rights struggles of the
50’s and 60’s, I believe we are on the verge of a disability rights movement
heading into this decade.
This movement is one where people with disabilities are
looked at as equals throughout society, where wheelchairs and prosthetics
vanish before employer’s eyes and people are judged on their abilities – not
their disabilities. It’s time to make this a reality in the
workplace.
The National Council on Disability (NCD) Chairman, Jonathon
Young agrees. Last month, and as stated
on their website, the NCD released its annual progress report on national
disability policy. The report notes progress where it has occurred and makes
recommendations to both the executive and legislative branches where necessary.
The Chairman states “In the current era of fiscal restraint, our nation’s
long-term fiscal stability depends, in part, on creating meaningful
opportunities for Americans with disabilities to contribute to our nation’s
collective well-being and eliminating policies that trap people with
disabilities in cycles of poverty and dependence. The Chairman goes on to say that, “Effective
coordination and collaboration of supports and services that meet individual
needs has never been more essential. We
need to increase access and opportunity for our nation going forward. Failure
to do so not only jeopardizes the lives of people with disabilities; it also
threatens our national recovery.”
I couldn’t agree more and I urge you to join Chairman Young
and myself in this effort to increase disability access and opportunity across
the nation. All you need is an open mind
and the willingness to take action.
The Declaration of Independence states that, “All men are
created equal…” and I agree.
But without action, those powerful words are quickly reduced
to just another slogan.
Oh, and that 8th grader? The one that stood up for me to the wrestling
coach? Phil Freeman is now the Assistant
Superintendent of the fourth largest school district in the state of Michigan. He stands up for 17,000 children
everyday. How do I know this? Well, Phil and I have been best friends for
the past 40 years and talk daily on the phone.
When my publisher asked me who I wanted to dedicate Someone Like Me to, let’s just say one name stood above the
rest.
See what happens when you take action and include everyone? You can change people’s lives.
In interviews, I’m often asked, “Why did you write Someone Like Me? My initial thought in publishing my story was
to pass along hope and inspiration to my readers. It’s been great to see that happen, but I’ve
come to the realization that I’m on a bigger mission than gaining entry onto
the New York Times Bestseller list.
My life’s purpose today is to help level the playing field of
disability employment. I want to ensure
that everyone has the same opportunity to do whatever he or she wants to in
life. Some call that inclusion. I call it equal opportunity.
I’ll know I’ve succeeded when I start getting emails from
people around the country that say, “Mr. Quinn.
I just wanted to let you know that I have a disability and interviewed
for my dream job yesterday. I sat down
with the HR Rep, was honest about my condition, and you know what? I got the job! I can’t wait to get started.”
Who knows, maybe one day soon someone will be allowed to
serve his country openly with cerebral palsy…and obtain the rank of Senior
Chief Petty Officer.
May God bless you all and continue to bless this great
nation."
www.johnwquinn.com